What is Deafblindness?

What is Deafblindness?

Deafblindness is a unique and isolating sensory disability resulting from the combination of both hearing and vision loss or impairment with significant impacts on communication, socialisation, mobility and daily living.

Causes of Deafblindness

There are over 70 known causes of deafblindness. Causes can be categorised into two groups: acquired (loss is acquired later in life) or congenital (child is born deafblind for example: prenatal infection, genetic/ chromosomal syndromes or birth trauma). When people hear the word “deafblind” they often think it means seeing and hearing nothing at all – but it doesn’t have to. Some deafblind people are totally blind and profoundly deaf, but most have some useful vision, hearing or both.

History of Deafblind West Australians

The Usher syndrome (a cause of deafblindness) Support Group was established by Senses Australia in 2007 to provide support for people who have Usher syndrome, their families, carers and friends. The group was renamed in 2015 to encompass the entire West Australians deafblind community.
The group meets regularly to provide information, education, advocacy, recreation opportunities and to establish fun, supportive social networks for people living with deafblindness.

To get involved and find out more

Visit our website:


Join the Deafblind West Australians Facebook Page:

DBWA Facebook

Send us an email:


Events and activities we’ve organised and participated in include:

  • Recreation activities e.g. water-skiing, canoeing, bushwalking, rock climbing, camps
  • Information sessions e.g. mini conference on deafblindness, assistive technology, guide dogs, genetic testing
  • Social networking e.g. Christmas picnic, dinners, pub catch ups, community events
  • Advocacy e.g. meeting with and writing to politicians, raising community awareness

17th International Deafblind Conference 2019


17th International Deafblind Conference

It is never too early to start saving!

Hosted by Able Australia, the 17th Deafblind International World Conference will be held on the Gold Coast, Australia on 12-16 August 2019.

Italian Deafblind group showing what Deafblindness can be - one eye and one ear

Save this date in your diary and watch this space as we continue to add more information about what’s on, where to go and what to expect.

For further details – Keep your eyes open for the information from Australian Deafblind Council and/or Able Australia newsletter.

Deafblind West Australians Christmas Party 2017

You’re invited!!

Deafblind West Australians Christmas Party

Funded by “Lets Connect”

Come along for a delicious Spit Roast

Christmas Picnic and Ice-cream!!!!

When:    Sunday December 3rd, 2017

Time:     11.00am to 3.00pm

Where:   Bardon Park – Corner Fourth Ave East and Bardon Place, Maylands

!!! BYO Cold Drinks !!!

!!! BYO Chairs and/or Rugs !!!

BYO Games: Football, Cricket, Bocce, Frisbee etc

 RSVP: 28th November 2017 Sharyn sharyn.m1964@gmail.com

Discussion with Colin Barnett MLA

Calling Deafblind West Australians

Discussion with Colin Barnett MLA

Member for Cottesloe, former Premier of West Australia



Eddie Szczpanik Chairperson of DBWA has arranged a meeting with former West Australian Premier Colin Barnett.  Purpose of this meeting is to raise awareness and advocate for the needs of people living with deafblindness in Western Australia.  How can the Liberal Party support deafblind?  Come along and have your say.


When:           Thursday the 26th of October, 2017

10.00 am – 12.00 noon


Where:          Senses Australia, 11 Kitchener Avenue,

Victoria Park


R.S.V.P:         Numbers are limited so please RSVP by

Tuesday 24th of October

Eddie Szczepanik  eddie.szczepanik@gmail.com

04397 494 464  Text only